000 03539cam a22005174a 4500
001 muse51155
003 MdBmJHUP
005 20161111135912.0
006 m o d
007 cr||||||||nn|n
008 151130s2016 nju o 00 0 eng d
010 _z 2015032497
020 _a9780813574387
020 _a0813574382
020 _z9780813574363 (hardback)
020 _z0813574366
035 _a(OCoLC)957249094
040 _aMdBmJHUP
_cMdBmJHUP
043 _an-us---
050 0 0 _aKF1263.H57
_bL39 2016
100 1 _aLawrence, Susan C.,
_eauthor.
245 1 0 _aPrivacy and the past
_h[electronic resource] :
_bresearch, law, archives, ethics /
_cSusan C. Lawrence.
260 _aNew Brunswick, New Jersey :
_bRutgers University Press,
_c2016.
_e(Baltimore, Md. :
_fProject MUSE,
_g2015)
300 _a1 online resource (pages cm.)
336 _atext
_btxt
_2rdacontent
337 _acomputer
_bc
_2rdamedia
338 _aonline resource
_bcr
_2rdacarrier
490 0 _aCritical issues in health and medicine
504 _aIncludes bibliographical references and index.
505 0 _aIntroduction : The Historians, the County, and the Dead -- Research, Privacy, and Federal Regulations -- Historians, the First Amendment, and Invasion of Privacy -- Archivists at the Gates -- Managing Privacy : Historians at Work -- Conclusion : Resistance.
520 _a"In 2006, a HIPAA Compliance Officer in a rural Iowa county wanted to shut down a graduate student's research on a manuscript register of those admitted to a poor farm in the nineteenth century. The reason? It contained sensitive health information that could affect the well-being of living county residents. The 2003 HIPAA Privacy Rule did, in fact, protect this document from historians' prying eyes. In Privacy and the Past, Susan C. Lawrence explores why she found this experience so troubling. In the process, she explores historians' ethical obligations to their research subjects, both the living and the dead. She queries the extent to which we do and should control access to information about people as historical actors and as unwitting participants in past events. She questions who gets to decide what is revealed and what is kept hidden in decades-old records. She examines laws and court cases, and tackles archives and archivists. She looks at how demands to maintain individual privacy both protect and erase the identities of people whose stories make up the historical record. She encourages historians to vigorously resist any expansion of regulatory language that extends privacy protections to the dead. This book offers a critical analysis of the ways that broad privacy concerns shape how and when historians can understand individuals' lives as they created our collective American past. "--
_cProvided by publisher.
588 _aDescription based on print version record.
650 7 _aMEDICAL / Ethics.
_2bisacsh
650 7 _aSCIENCE / History.
_2bisacsh
650 7 _aLAW / Privacy.
_2bisacsh
650 7 _aMEDICAL / History.
_2bisacsh
650 0 _aHistorians
_xLegal status, laws, etc.
_zUnited States.
650 0 _aHistory
_xResearch
_xLaw and legislation
_zUnited States.
650 0 _aPrivacy, Right of
_zUnited States.
655 7 _aElectronic books.
_2local
710 2 _aProject Muse.
830 0 _aUPCC book collections on Project MUSE.
856 4 0 _zFull text available:
_uhttps://muse.jhu.edu/book/47766/
945 _aProject MUSE - UPCC 2016 History
945 _aProject MUSE - UPCC 2016 Complete
999 _c2063
_d2063